MyQoL iEuroEwing is a specially developed app for patients in the “iEuroEwing” clinical study in order to record important data on quality of life easily and without much effort for the patients during the course of the study in accordance with data protection regulations. As part of the iEuroEwing clinical study, the app helps to better understand the effects of the therapy on patients' everyday lives and to make future treatments even more patient-oriented.

Features and Benefits:

Easy access: The app is downloaded directly to your smartphone in the clinic, with clinic staff able to provide support. Personal access data ensures that only you as the patient (or parent) have access to the questionnaires. You can change the password after you log in for the first time.

Easily be informed about new surveys: We will inform you via the app via push notifications about outstanding surveys during the course of treatment and aftercare. Please do not delete/delete the app from your cell phone until the last collection date has been reached - you will also find out when that is via the app. If you get a new cell phone, you can simply download the app again from the App Store and log in again with your personal access data.

What exactly is it about and why is it important? The questionnaires cover quality of life, chronic fatigue, perception of pain and possible limitations in everyday activities - topics that are asked because the treatment of Ewing's sarcoma is physically and emotionally demanding. The MyQoL iEuroEwing app makes it possible to bring in your perspective and make the effects of therapy on your life understandable. This information helps to better tailor future treatments to the needs of patients and to design therapies so that they are not only medically effective, but also take into account the patient's quality of life during treatment.