The Emily Center at Phoenix Children's Hospital presents Our Way and inflammatory bowel disease: an instrument that gives families of children with this disease the information they need to take care of them safely at home.
When children are in a hospital or clinic, parents may feel overwhelmed when doctors and nurses speak with difficult medical words. Sometimes, health professionals believe they speak clearly but do not see if patients understand their indications. If you can repeat the information they teach you in your own words, then you will be sure that you understood.
The Our Way application and inflammatory bowel disease has been designed to:
- Facilitate communication between families and the health care team.
- Help parents understand what they should know to care for the child safely at home.
- Give parents a space to admit that they do not know or do not understand what they are told, and to ask questions.
- Guide families about what information they need to say or show to the nurse or doctor.
In this way, the health professional can confirm that the family received the correct information, that they can provide the necessary care, and correct misunderstandings.
- Help families feel confident that they can take care of the child at home after discharge, learn the signs of possible problems and know how to respond.
The Emily Center, Phoenix Children's Hospital
Founded in 1990, the center honors Emily Anderson with her name. Emily fought a rare form of leukemia for four years and died a few days before her 17th birthday.
Frustrated by the lack of easy to understand information about Emily's disease, parents founded The Emily Center so that the families of sick children could always receive accurate, easy to understand and free pediatric health information for Arizona families. http://www.emilycenter.org and on Twitter @emilycenter.
The Our Way application and inflammatory bowel disease received a Cox subsidy.