The Emily Center at Phoenix Children’s Hospital presents Our WayTM and stem cell transplant so that families with children who need this transplant know how to identify what they need to know before they go home from the hospital.
When children are in the hospital, parents may feel overwhelmed when doctors and nurses speak with difficult medical words. Sometimes, health professionals believe they speak clearly but don't see if patients understand their indications. If you can repeat the information they teach you in your own words, then you will be sure that you understood.
The Our WayTM application and stem cell transplant is designed to:
- Facilitate communication between families and the health care team.
- Help parents understand what they should know to care for the child safely at home.
- Give parents a space to admit that they do not know or do not understand what they are told, and to ask questions.
- Guide families about what information they need to say or show to the nurse or doctor.
In this way, the health professional can confirm that the family received the correct information, that they can provide the necessary care, and misunderstandings are corrected.
- Help families feel confident that they can take care of the child at home after discharge, they will know the signs of problems and will know how to respond.
The Emily Center, Phoenix Children’s Hospital
Founded in 1990, the center honors Emily Anderson with her name. Emily fought a rare form of leukemia for four years and died a few days before her 17th birthday.
Frustrated by the lack of easy to understand information about Emily's disease, parents founded The Emily Center so that families of sick children could always receive accurate, easy to understand and free pediatric health information for Arizona families. http://www.emilycenter.org and on Twitter @emilycenter.
The Our WayTM application and stem cell transplant received a Cox grant.