ARC-DS by MetricWire has been created for use in research studies conducted by Washington University in St. Louis as part of the Ambulatory Research in Cognition – Down Syndrome (ARC-DS) study.

As part of your participation, you’ll be asked to complete surveys about your thoughts, feelings, and behaviors. With your permission, the app may also collect sensor data—such as activity levels, environmental context, and smartphone usage patterns—to help researchers better understand cognitive and behavioral health in individuals with Down syndrome. Your app experience is customized by the study team using the MetricWire Research Portal.

All data you submit is securely protected by MetricWire and managed by the ARC-DS study team. You remain in full control of your data—you can review what you’ve shared, choose to leave the study at any time, or delete your data if you wish.

If you have any questions, please contact the ARC-DS study team using the contact information they’ve provided.

ARC-DS by MetricWire makes research participation simple, secure, and meaningful—designed with transparency and user control at the core.